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Everything posted by Tigeh
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Finally seen a clinical geneticist after waiting 2 years as a family. Result? I have a connective tissue disorder.
Maybe Ehlers-Danlos Syndrome... As, probably, does my wife, with my kid likely to have a more life threatening one the person we saw knew fuck all about, because we didn't see the person we'd paid and booked to see.Turns out they're not going to do full genetics on me for a few months at least, or request the results in a hurry when they do, because the 'tests are expensive' and 'they need to prioritise'.
But if I'd booked it as 2 appointments, or 3 (kid too) I'd have been given a testing panel straight away - as would my wife and kid. If it's the things they think it is for my wife, it could kill her in pregnancy or giving birth. If it's what they think it is for my kid, it could kill him anytime, but if he has a diagnosis he'd get priority treatment and possibly life-saving drugs + treatment plan in ambulance and hospital.
Apparently you have to have AU$9000 spare for the lives of your family not to be gambled with, if you live in Australia.
Which is about $49000 more than I have.
So FML.
PS. Of course, wife and I are expecting a baby. We're not particularly in the mood to bury another of our offspring though.Aussie healthcare can go root itself with a broken bottle.
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Fuck. Hope this all pans out for you Tigeh.
Having had a couple of major health issues in our family over the last couple of years, our experience was that when the shit hit the fan the public health system came through with the goods. No coin required. But as soon as it's not deemed of direct threat to life or limb, like my bone grafts, expect to wait. We're in Tassie.
No fucking way should you have to have 9k to get this sorted. Time to contact state and federal health ministers. The 7:30 Report might be worth a try as well? They seem to specialise in covering the failings within our health system of late.
Best of luck.
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Really sick of people close to me dying. Especially when I'm too fucking poor to fly to the funeral.
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I'm sorry for your loss.
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- SchnitzelTruck, Tigeh and mostlyhybrid
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You're the guy who caps because 4v1 against a 350hp T95 is "asking for a loss"? Or is that another Dr_J?